cfs/me – My Wandering Wheels

London

We opted to stay at the Hilton London Paddington at Paddington Station. It is central within London, right on many bus and train lines, and most importantly the Heathrow Airport Express goes directly there so on arrival to London you have an easy landing. It was the perfect location for many reasons. When you arriveContinue reading “London”

Paris in a large power Wheelchair

I did NOT find the French rude. First thing- if you aren’t rude first, they won’t be rude. Whenever you enter a shop, restaurant, before you ask someone anything or address someone ALWAYS say “Bonjour” or if it is evening “Bonsoir” (pronounced bon-swa). ALWAYS. They are more into formal niceties (make sure to add yourContinue reading “Paris in a large power Wheelchair”

Disneyland California

(writing 2/26/2021, updated 6/23/25) My very first plane ride with the wheelchair was from San Francisco to Disneyland. It started and ended with disaster, but we made it! I had been warned about how to prepare the chair for flight and it survived the trip there. More on flights and transit later in post. WhenContinue reading “Disneyland California”

O’ahu (at Disney’s Aulani)

This is the second time I have been there since getting sick four and a half years ago. First time here. It was amazing both times, though on a personal note much more so this time because my health has noticeably improved since I went four years ago. They have done so much to honorContinue reading “O’ahu (at Disney’s Aulani)”

Southwest Trip and the Falcon

We will be traveling in an accessible RV with my wheelchair across the Southwest from San Francisco. Our plan is to go San Francisco > Bartow > Grand Canyon > Bryce Canyon > Moab (and Arches National Park) > Santa Fe > Gallup > Mojave Desert (via Oatman)> SF

The Falcon

A folding power wheelchair suitable for ME/CFS and other conditions which require head support, a recline and raised feet. The headrest and raisable footrests are not included but you can add them. I think this will be a great chair for me when traveling places where I can’t use a wheelchair van and for shorter times out around my hometown, especially in tight indoor spaces like restaurants and people’s houses.

New Hampshire

Accessible skiing at Waterville Valley has a whole “adaptive snow sports” program and they are amazing.

Traveling with ME/CFS

There is a huge range of ME/CFS and you need to tailor your travel to fit your level. You need to stay well within your safety envelope for activity when you are outside or traveling.

O’ahu (Aulani)

gorgeous sunset between palm trees on the ocean

Japan

Tokyo is very accessible. I went on a business trip in late July-August 2019. My artwork was being shown at the Museum of Contemporary Art, Tokyo. I spent a few days installing while my husband and daughter went wandering and then we got to look around together for about a week.